Down Syndrome – Fifty Shades of Mommy

Updated on August 11, 2026March 21, 2024Down Syndrome

March 21st is World Down Syndrome Day | Quick Facts About Down Syndrome & 4 Ways to Participate

World Down Syndrome Day is personal for me because Down syndrome is part of someone I love more than words can explain: my daughter, Leilani. She has taught me that milestones may look different, strength comes in many forms, and a diagnosis is only one small part of who a person is. March 21st is a day to celebrate Leilani and others with Down syndrome, challenge misconceptions, encourage inclusion, and remind the world that our differences are not something to apologize for. They are something to understand, respect, and celebrate.

Updated on June 26, 2024October 1, 2019Down Syndrome Mommy life in general

October is Down Syndrome Awareness Month

This month we raise awareness as to what it means to have Down syndrome and how people play a vital role in our lives and …

Updated on June 24, 2024January 25, 2017Down Syndrome

I will never feel bad for standing up for what is right.

The ‘R’ word. Would you say it in front of my daughter? Is there ever really a good time to use it? NO. There may not be anyone around at the time that you wouldn’t necessarily say it in front of, but there are always people around that may be offended. Someone they may love could have a disability. Please remember that.

Updated on June 24, 2024June 1, 2016Down Syndrome Mommy life in general

Down Syndrome Diagnosis – 1 year later

One year ago. That’s when our lives changed completely. One year ago. That’s when our eyes were opened up to what really matters in life and in this family. One year ago. That’s when we found out that Leilani had Down syndrome.

Updated on June 25, 2024March 21, 2016Down Syndrome Mommy life in general

World Down Syndrome Day 2016

Today I will celebrate Leilani for the person she is and will become someday. And if you’ve met her, you know she is one spunky adorable little girl that lights up a room with her smile and her laughter. I will also celebrate the people in our lives that have accepted her and are teaching their children and families the love and compassion and acceptance of others. Those people are true advocates for Leilani just as much as we try to be! Thank you 🙂 and Happy World Down Syndrome Day! Spread the word!

Updated on June 25, 2024November 2, 2015Down Syndrome Mommy life in general

Leilani’s Diagnosis – our reactions

Leilani’s story/diagnosis is so different than most. Most people find out if their child has Down syndrome either while they are pregnant, or the day they are born (or shortly thereafter). We had almost a full year of not knowing. And let me tell you, it was such a blessing in disguise.

September 21, 2015September 21, 2015Down Syndrome Mommy life in general

Down Syndrome Facts

Knowledge is power. Do your research. Don’t just repeat things that you’ve heard from other people. If you are going to talk about something like Down syndrome, please know what you are talking about. Please understand that some things aren’t acceptable to say and may come off as offensive. Please don’t write my daughter’s future because of a diagnosis. All people are different, whether they have Down syndrome or not. If you have questions, ask.

September 20, 2015September 20, 2015Down Syndrome Mommy life in general Shit no one tells you about

Leilani’s Birth Story

This is the story of 1 amazing little girl, and how she has changed our lives…forever. She continues to change our lives every single day. Maybe she’ll change yours too.

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