Down syndrome is part of Leilani’s story, but it does not define who she is. At 12 years old, she is finally getting the chance to be part of something she has always dreamed of: cheerleading. This season has shown us what true inclusion looks like – encouragement, patience, belonging and a team that cheers her on every step of the way.
World Down Syndrome Day is personal for me because Down syndrome is part of someone I love more than words can explain: my daughter, Leilani. She has taught me that milestones may look different, strength comes in many forms, and a diagnosis is only one small part of who a person is. March 21st is a day to celebrate Leilani and others with Down syndrome, challenge misconceptions, encourage inclusion, and remind the world that our differences are not something to apologize for. They are something to understand, respect, and celebrate.
This month we raise awareness as to what it means to have Down syndrome and how people play a vital role in our lives and …
The ‘R’ word. Would you say it in front of my daughter? Is there ever really a good time to use it? NO. There may not be anyone around at the time that you wouldn’t necessarily say it in front of, but there are always people around that may be offended. Someone they may love could have a disability. Please remember that.
One year ago. That’s when our lives changed completely. One year ago. That’s when our eyes were opened up to what really matters in life and in this family. One year ago. That’s when we found out that Leilani had Down syndrome.
Today I will celebrate Leilani for the person she is and will become someday. And if you’ve met her, you know she is one spunky adorable little girl that lights up a room with her smile and her laughter. I will also celebrate the people in our lives that have accepted her and are teaching their children and families the love and compassion and acceptance of others. Those people are true advocates for Leilani just as much as we try to be! Thank you 🙂 and Happy World Down Syndrome Day! Spread the word!
Leilani’s story/diagnosis is so different than most. Most people find out if their child has Down syndrome either while they are pregnant, or the day they are born (or shortly thereafter). We had almost a full year of not knowing. And let me tell you, it was such a blessing in disguise.
Knowledge is power. Do your research. Don’t just repeat things that you’ve heard from other people. If you are going to talk about something like Down syndrome, please know what you are talking about. Please understand that some things aren’t acceptable to say and may come off as offensive. Please don’t write my daughter’s future because of a diagnosis. All people are different, whether they have Down syndrome or not. If you have questions, ask.
This is the story of 1 amazing little girl, and how she has changed our lives…forever. She continues to change our lives every single day. Maybe she’ll change yours too.
